Tourette's syndrome
There areseveral treatment options available for people with Tourette's syndrome.
The various treatments forTourette's syndromeare outlined below. You can also read a summary of the pros and cons of the treatments for Tourette's syndrome , allowing you to compare your treatment options.
The first and most important part of treatment forTourette's syndromeis to ensure you, your child and, if needed, your childs teachers, friends and other family members all have good information and knowledge about the condition. This includes:
Next, thetreatment planfor tics could involve one or more of the following:
Non-medical treatments alone, such asbehavioural therapy,may be needed if the Orthodontics are relatively mild and infrequent.
In cases where a person's tics are more severe and disrupt day-to-day activities, a combination of therapy and medication may be recommended.
Surgery is usually only recommended as a 'treatment of last resort' if the tics are particularly severe and fail to respond to other treatment.
The doctor in charge of your or your childs care, usually a neurologist (abrain and nervous system specialist), will recommend what they think is the best treatment option. However, the final decision will be yours.
If your child is old enough to understand fully the implications of their decision,they'll be asked to decide what treatment they prefer.
It's a type of psychological treatment designed to change the pattern of your or your childs behaviour.
Habit reversal is a type of behavioural therapy that has proved successful in treating Tourettes syndrome. It's based on the following two principles:
The first stage is to monitor the pattern and frequency of the tics, and identify any sensations that are triggering them. The next stage is to find an alternative, less noticeable method of relieving the premonitory sensations instead of a tic. This is known as a competing response.
For example, your child may experience an unpleasant sensation in their throat that causes them to grunt. Therefore, the next time your child feels the unpleasant sensation, they are asked to take a series of deep breaths rather than grunting, to try to relieve the sensation.
Habit reversal is often combined with relaxation therapy. Relaxation techniques , such as deep breathing or visualisation (thinking about something pleasant as a distraction), can help prevent feelings of stress and anxiety, which can often make tics worse.
Exposure and response prevention (ERP) involves increasing exposure to the urge to tic in order to suppress the tic responsefor longer. This works on the theory that you get used to the feeling of needing to tic until the urge, and any related anxiety, decreases in strength.
Alpha2-adrenergic agonists are usually recommendedfor treatment of mild to moderate symptoms of Tourettes syndrome.
This type of medication is thought to stabilise levels of a brain chemical called norepinephrine. This is thought to decrease the risk of the basal ganglia misfiring and triggering tics.
Clonidine is the alpha2-adrenergic agonist widely used to treat Tourettes syndrome.
Common side effects of clonidine include:
These side effects are usually mild and should improve when the body gets used to the medication.
Muscle relaxants havebeen shown to be effective in helping control tics, particularly physical tics.
Baclofenandclonazepam are two muscle relaxants that are sometimes used to treat Tourettes syndrome. You or your child may feel drowsy and dizzy after taking these.
Adults being treated with muscle relaxants shouldn't drive or use tools or machinery if they feel dizzy or drowsy. You should also avoid drinking alcohol while taking muscle relaxants because it could make you feel very ill.
Dopamine antagonists are the most effective type of medication for preventing tics. However, they can cause a wide range of side effects, so will only be recommended in cases where the symptoms are particularly severe or fail to respond to other medications.
Dopamine antagonistsare given orally (as a tablet) or by injection. They work by blocking the effects of dopamine on the brain. Dopamine is a chemical in the brain thought to be associated with tics.
There are two main types of dopamine antagonists. They are:
Both the older and newer dopamine antagonists have side effects, although not everyone experiences them, and their severity differs from person to person.
The side effects ofthe older dopamine antagonists include:
Side effects of both the older and newer dopamine antagonistsinclude:
The newer generation of dopamine antagonists are usually recommended because they're less likely to cause side effects. However, they aren't suitable or effective for everyone.
Adults with Tourettes syndrome who are being treated withdopamine antagonistsmay also experience a loss of libido (decreased sex drive).
If your child has been prescribed adopamine antagonist, and they're finding the side effects particularly troublesome, you should contact the doctor in charge of their care. There may be an alternative your child will be able to tolerate better.
Aripiprazole is the newest type of dopamine medicine thatseems to be helpful and appears to have fewer side effects. Although there hasn't yet been a large clinical trial of this medicine for Tourettes syndrome, it has been used successfully in many people with tics.
An experienced doctor may be able to offer aripiprazole as a treatmentoption.
Surgery is usually regarded as a 'treatment of last resort' for people with severe Tourettes syndrome that has failed to respond to other treatments.It's usually only recommended for adults.
The aim of surgery is to make a small break in some of the pathways in the brain that may be responsible for tics. The region of the brain that is usually operated on is called the limbic system, although several different areas have been targeted.
Surgery has largely been replaced with deep brain stimulation (DBS). Thisis a relatively new technique that, like surgery, has been used to treat very severe cases of Tourettes syndrome where other treatments have failed.
DBS involves permanently implantingelectrodes (small metallic discs) in the parts of the brain known to be associated with Tourettes syndrome.
The electrodes are attached to small generators that are implanted elsewherein the body. The generators send electronic pulses to the electrodes, which stimulate different parts of the brain. By stimulating certain areas of the brain the symptoms of Tourettes syndrome can often be controlled.
Initial results of DBS have been encouraging, with some people showing a substantial reduction in their tics lasting for more than five years. DBS appears to be most effective when combined with behavioural therapy (seeabove).
However, both limbic system surgery and DBS haveonly beenused on asmall numberof people with Tourettes syndrome, and there's not yet sufficient evidence to justify their use as standard treatments for the syndrome.
Tourette's syndrome is a neurological condition, characterised by a combination of involuntary noises and movements called tics.
If your child has tics, it does not necessarily mean that they have Tourettes syndrome.
The cause of Tourettes syndrome is unknown. However, it is thought to be linked to problems with an area of the brain known as the basal ganglia.
In diagnosing Tourettes syndrome, the first stage is to rule out other possible causes of your childs symptoms.
Behavioural therapy and medication are the main treatments for Tourette's syndrome. Rarely, in severe cases, surgery or deep brain stimulation may be used.
Tourette's syndrome is often associated with psychological and behavioural problems, as well as learning difficulties.
Joanna was diagnosed with Tourette's syndrome in her 30s, and has had tics all her life. She describes what effects different medications had on her.