Retinoblastoma (eye cancer in children)
Gettingsupport
The specialist teams at the retinoblastoma centres at The Royal London Hospital and Birmingham Children's Hospital have a wealth of knowledge about retinoblastoma. You can discuss any worries or concerns you have with them.
They'll also be able to put you in touch with the parents of children who've recently been diagnosed with retinoblastoma and treated for it.
The Childhood Eye Cancer Trust (CHECT) can give you further information about retinoblastoma. It also provides help and support to parents and carers of children affected by retinoblastoma, as well as adults who were affected during childhood.You can contact them on 020 7377 5578 (Monday to Friday, 9am to 5pm).
You can also call theCancer Research UK helpline to speak to a cancer nurse who will be able to provide you with information and support. The number is 0808 800 4040 (Monday to Friday, 9am to 5pm).
Macmillan operate a similar helpline0808 808 00 00 (Monday to Friday, 9am to 8pm).
Medically Reviewed by a doctor on 21 Dec 2018
Introduction
Read about retinoblastoma, a rare type of eye cancer that affects young children. Information about symptoms, causes, diagnosis, treatment, plus help and support.
Signs and symptomsof retinoblastoma
Signs and symptoms of retinoblastoma include: an unusual white reflectionin thepupil this may be apparentin photos where only the healthy eye appears red from the flash, or you may notice itin a dark
Whatcauses retinoblastoma?
Retinoblastoma is cancer of the retina. The retina is the light-sensitive lining at the back of the eye.During the early stages of a baby's development, retinal eye cells grow very quickly and then st
Diagnosingretinoblastoma
Your GP will carry out a'red reflex test' in a darkened roomusing an ophthalmoscope (a magnifyinginstrument witha light at one end).When a light is shone into your child's eyes, your GP will see a red
Treatingretinoblastoma
Your child will be treated by a specialist retinoblastoma team at either the Royal London Hospital or Birmingham Children's Hospital.However, if your child needschemotherapy, it will usually be carrie
Screeningfor retinoblastoma
If you're expecting a baby and you had retinoblastoma yourself as a child, or you have a family history of retinoblastoma, it's important to tell your GP or midwife.This is because in some cases retin
Gettingsupport
The specialist teams at the retinoblastoma centres at The Royal London Hospital and Birmingham Children's Hospital have a wealth of knowledge about retinoblastoma. You can discuss any worries or conce
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