The specialist teams at the retinoblastoma centres at The Royal London Hospital and Birmingham Children's Hospital have a wealth of knowledge about retinoblastoma. You can discuss any worries or concerns you have with them.

They'll also be able to put you in touch with the parents of children who've recently been diagnosed with retinoblastoma and treated for it.

The Childhood Eye Cancer Trust (CHECT) can give you further information about retinoblastoma. It also provides help and support to parents and carers of children affected by retinoblastoma, as well as adults who were affected during childhood.You can contact them on 020 7377 5578 (Monday to Friday, 9am to 5pm).

You can also call theCancer Research UK helpline to speak to a cancer nurse who will be able to provide you with information and support. The number is 0808 800 4040 (Monday to Friday, 9am to 5pm).

Macmillan operate a similar helpline0808 808 00 00 (Monday to Friday, 9am to 8pm).

Content supplied by the NHS Website

Medically Reviewed by a doctor on 21 Dec 2018