There's no specific treatment for EDS, but with support and advice it's possible to manage many of the symptoms.
It's important to be careful about activities that put a lot of strain on your joints or put you at risk of injury. However, it's important not to be overprotective and avoid living an otherwise normal life.
Advice will depend on which type of EDS you have and how it affects you.
For more tips and advice on joint care, you can read about living with EDS on the Ehlers-Danlos Support UK website.
People with EDSmay also benefit from support from a number of different healthcare professionals. For example:
Your GP or consultant can refer you to these services.
Ehlers-Danlos syndrome (EDS) is the name for a group of rare inherited conditions that affect connective tissue. Find out about the symptoms, causes and treatments.
EDS-hypermobile type is the most common type of EDS. Rarer types include classical EDS, vascular EDS and kyphoscoliotic EDS. EDS-hypermobile type EDS-hypermobile type (EDS-HT), also known as hypermo
See your GP if you have several troublesome symptoms of EDS. You don't usually need to worry if you only have a few symptoms and they're not causing any problems. Joint hypermobility, for example, is
There's no specific treatment for EDS, but with support and advice it's possible to manage many of the symptoms. Adapting your activities It's important to be careful about activities that put a lot
EDS can be inherited, but in some cases it occurs by chance in someone without a family history of the condition. The two main ways that EDS is inherited are: autosomal dominant inheritance (hyper
If you have EDS, your clinical team will pass information about you on to the National Congenital Anomaly and Rare Diseases Registration Service (NCARDRS). This helps scientists look for better ways
The following websites provide moreinformation, advice and support forpeople with EDS and their families: Ehlers-Danlos Support UK you can also call their free helpline on0800 907 8518, find local